Challenges for rare disease research

February 28: International Day of Rare Diseases

At present it is estimated that there are around 7,000 rare or minority diseases. These are diseases that affect a small number of the population (5 out of 10,000 inhabitants), and due to their low prevalence, they are usually the great ones forgotten by science. They usually have no cure or treatment, producing a serious disorder in the quality of life of those who suffer from it and their families. 7% of the world's population suffers from some rare disease.

At migranodearena we know that the key is in research, that is why we want to give visibility to these diseases, raise awareness about the situation that many of the families live and ask for your collaboration for challenges that raise funds for the investigation of these pathologies and thus give hope to these patients and their families.

Total collected : 72.314€
1.475€
Investigación científica Infancia Enfermedades raras

IRONDRAVET

3'8km nadando, 180km bici y 42km corriendo en el Campeonato de España de Triatlón de Larga Distancia para visibilizar al Síndrome de Dravet

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