Collected
2.115€
To benefit
300km por Duchenne (Sulayr)
Corremos para vencer a Duchenne!
Collected
2.115€
Goal
2.000€
Donations
82
Left
Finished
In support of
Cause lead by
Category
Two friends, Christine Nixon and Rafa Segundo, ultra-trail and marathon runners who adore the mountains.
We love a challenge, we like to help, and we like to live life to the fullest. The perfect combination!
We planned a personal challenge of running the 300km+ of the Sulayr trail (GR-240) in 8 days at the end of August, (a marathon a day), crossing the Sierra Nevada mountain range from beginning to end. This morphed very quickly into becoming an even bigger challenge, and much more important; raising money and awareness for people suffering from Duchenne muscular dystrophy (DMD) and Becker (DMB).
Why Duchenne?
To raise funds and awareness for Duchenne Parent Project Spain (https://www.duchenne-spain.org), an association created by parents, relatives and friends of children who suffer from Muscular Dystrophy of Duchenne and Becker. Their main purpose is to find a cure for this terrible disease, which they try to do by granting research grants. Funded projects - Duchenne Parent Project Spain (duchenne-spain.org).
Duchenne muscular dystrophy (DMD) is a rare genetic disorder characterized by progressive muscle degeneration and weakness due to the alterations of a protein called dystrophin that helps keep muscle cells intact. DMD is one of four conditions known as dystrophinopathies. The other three diseases that belong to this group are Becker Muscular dystrophy (BMD, a mild form of DMD); an intermediate clinical presentation between DMD and BMD; and DMD-associated dilated cardiomyopathy (heart-disease) with little or no clinical skeletal, or voluntary, muscle disease.
DMD symptom onset is in early childhood, usually between ages 2 and 3. The disease primarily affects boys, but in rare cases, it can affect girls. This disease is diagnosed in 54 boys and girls in the world daily.
Those affected by this terrible disease lose their independence and need a wheelchair between the ages of 7 and 12. Around the age of 16 they usually need assisted respiration. Life expectancy rarely exceeds the age of 30 and is often earlier.
DPPE es una organización creada y dirigida por padres, madres y afectados por la distrofia musculare de Duchenne y Becker.
https://www.duchenne-spain.org/quienes-somos/
Donators (82)
María Francisca
Hidden donation
1,483 days ago
Diego
20€
1,483 days ago
Asun
Hidden donation
1,483 days ago
Sara
15€
1,483 days ago
Francisco Jose Ortega Martínez
25€
1,483 days ago
Elisa Isabel Marcos
25€
1,483 days ago
Isaac
5€
1,483 days ago
Anonymous
Hidden donation
1,483 days ago
Anonymous
25€
1,483 days ago
Manu gallegos
25€
1,483 days ago
Antonio jesus
10€
1,483 days ago
JOSÉ
5€
1,484 days ago
Laura A.
Hidden donation
1,484 days ago
MLUISA
25€
1,484 days ago
Anonymous
Hidden donation
1,484 days ago
Paqui
10€
1,484 days ago
Francisco
15€
1,484 days ago
Maria Luisa
15€
1,484 days ago
Jose Manuel
20€
1,484 days ago
Anonymous
Hidden donation
1,484 days ago
Manuel Jesús
35€
1,484 days ago
Anonymous
70€
1,484 days ago
Anonymous
35€
1,484 days ago
Emma Lay
20€
1,484 days ago
Conor
50€
1,485 days ago
Ana Garcia
10€
1,485 days ago
Fernando
25€
1,485 days ago
Irene
10€
1,485 days ago
Vero
15€
1,485 days ago
Alvaro
50€
1,486 days ago
José
Hidden donation
1,486 days ago
Maite
35€
1,486 days ago
Silvia
35€
1,486 days ago
Felisa
15€
1,486 days ago
Alfre
25€
1,486 days ago
Carmen Gador
Hidden donation
1,486 days ago
Anonymous
50€
1,486 days ago
Maria
50€
1,488 days ago
EMILIO
20€
1,488 days ago
Anonymous
Hidden donation
1,488 days ago
Ana MG
Hidden donation
1,491 days ago
Joanne Wright
25€
1,492 days ago
Maria
50€
1,494 days ago
Anonymous
35€
1,495 days ago
Nuria
25€
1,495 days ago
Philip K.
50€
1,500 days ago
Isabel
50€
1,506 days ago
Simon Martin
25€
1,513 days ago
Perico
25€
1,513 days ago
Anonymous
25€
1,513 days ago
Comments (34)
Diego
Un bonito reto que merecía un feliz final. Enhorabuena a los dos, sois muy grandes.
Asun
Con más personas como vosotros, el mundo sería mucho mejor. Gracias!
Sara
Aporto mi granito de arena!!!Mi más sincera enhorabuena. Un besazo enorme
Antonio jesus
Enhorabuena por esta iniciativa
JOSÉ
Un deseo cumplido y bien hallado por parte de RAFA y CHRISTINE esos 300K.
Las personas que ayudan a los más desfavorecidos son dignas de admirar.
Besos y abrazos 300 por Duchenne.
Emma Lay
What an achievement. Bravo!
Fernando
Mucha fuerza!! Bravo por vuestra iniciativa! Un abrazo
Fer y Ajo
Vero
Os deseo lo mejor 😘
Maria
Animo chicos! 👏🏼
EMILIO
Ánimo Christine!!!!
Tu puedes, un abrazo
Ana MG
Bravo campeones! Un abrazo, Christine xx
Maria
Mucho ánimo 👏🏼
Isabel
Vamos a conseguirlo!!!
Deborah Lawrenson
Ánimo mis campeones favoritos 😘😘😘
Eva María
Ánimo, ojalá consigas vuestro objetivo, personas como vosotros hacen el mundo mejor
Tomás
Ahí va nuestro granito de arena para ayudaros a conseguir vuestro objetivo. Mucho ánimo!
Clara
Mucho ánimo y fuerza con esta iniciativa tan bonita y generosa 🙌😘😘😘
Gloria
Muchísima suerte. Un beso desde Birmingham xXx
Rocío Plata
Gracias por visibilizar y llevar a cabo este reto en apoyo de Duchenne. GRACIAS.
Jenny & Joel
Go Christine go!
Helen
Hi Christine, sounds like an impossibly hard challenge but know you can do it. Xxx
Ruth Conisbee
Amazing! Good luck, I know you can do it!!! And such a great charity. In awe of you both Xx
Ken & Kaz
Now that is awesome! - good luck & keep us posted 👍
Mairi
You’re crazy 🤣
Luisa
Amazing!!! What a good cause, sois la caña!
M Angeles
Estáis realizando una labor encomiable, sois admirables.
Francisco Javier
Vamos a por ese Reto lo merecéis vosotros y lo merecen ellos.
Muchísimas gracias