Collected

1.015€

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VII Solidarity Race Duchenne Somriures Valents

Campaign to support affected families and research on Duchenne and Becker muscular dystrophies (Hosp. Sant Joan de Déu Bcn)

Collected

1.015€

Goal

1.000€

Donations

8

Left

Finished

102%

Cause lead by

Category

Investigación científica Salud Infancia Enfermedades raras

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Published: 8 Oct 2024

The Duchenne Somriures Valents team is made up of family and friends affected by Duchenne muscular dystrophy. We are a non-profit organization dedicated to supporting individuals and families affected by Duchenne muscular dystrophy (DMD), in an organized and voluntary manner. Our mission is to improve the quality of life and well-being of those living with DMD by providing comprehensive support, promoting awareness and driving advances in research. Through collaborative efforts and a compassionate approach, we at Duchenne Somriures Valents aim to create a supportive community and contribute to research, keeping hope in the development of effective treatments and therapies for DMD, our only chance for our braves.

This year, we are celebrating the 7th edition of the Duchenne Brave Smiles Charity Race, with the aim of spreading the word about these muscular dystrophies, as well as collecting funds for research, in the hope that we can find a cure for our Braves, and continue to support the affected families.

With your help, we can maintain active research to find an effective treatment and change the future of our children. We can count on you?

Somos una asociación sin ánimo de lucro formada por padres y amigos de niños con distrofia muscular de Duchenne y Becker. La distrofia muscular de duchenne es una enfermedad infantil degenerativa y que a día de hoy no tiene cura. Los niños pierden su fuerza muscular conforme van creciendo, y todos sus músculos se debilitan hasta que necesitan una silla de ruedas para poder caminar. Recaudamos fondos para la investigación, tratamiento y manejo de la enfermedad. Nuestros fondos van destinados a la Unidad de Patología Neuromuscular del Hospital de Sant Joan de Deu de Barcelona.

Donators (8)

Àngela

200€

347 days ago

Núria

25€

361 days ago

Marisa

85€

382 days ago

Anonymous

50€

410 days ago

Emma

50€

413 days ago

Antoni Pons SA

300€

415 days ago

NARCIS I JOAN SOLER, S.L. ORTOPEDIA SOLER

300€

418 days ago

Merche

Hidden donation

421 days ago

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Comments (2)

NARCIS I JOAN SOLER, S.L. ORTOPEDIA SOLER

418 days ago

Un altre any amb vosaltres

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