Collected
1.570€
To benefit
LAP BY LAP FOR THE MEF2C
Solidarity race in Backyard Ultra format will be held on August 1 at 22:00h in Villafranca del Cid organized by CT Tripicaio Villafranca.
Collected
1.570€
Goal
2.000€
Donations
51
Left
Finished
In support of
Cause lead by
Category
Next August 1st at 22:00h, Villafranca del Cid will become the scene of a unique challenge:
“Lap by lap for the MEF2C”, a solidarity race in Backyard Ultra format, organized by the Club CT Tripicaio Villafranca.
One lap. One hour. Repeat until the body endures.
This is how a Backyard works: participants complete a circuit of about 6.7 km every hour, leaving punctually at the start of each new lap. The challenge is not speed, but endurance, community and, in this case, solidarity.
This race has a very special purpose: to give visibility and raise funds for research into MEF2C Syndrome, a rare genetic disease that severely affects the neurological development of those who suffer from it.
But you don't have to run to join the challenge.
You can also collaborate by making a donation through the platform "Mi Grano de Arena".
Every 10 euros is symbolically equivalent to a lap given for this cause.
The goal: to reach 2000 euros, i.e. 200 laps of solidarity between all of us.
Every step, every lap, every contribution counts.
Run one, run ten, or just come and cheer. And if you can't come, do your lap from wherever you are!
Villafranca del Cid joins lap by lap for those who need it most.
And you, will you join us?
El Síndrome de Microdeleción 5q14.3-MEF2C está causado por una deleción o mutación del gen MEF2C, localizado en el cromosoma 5. Es una enfermedad minoritaria que afecta al desarrollo psicomotor, y que causa un retraso importante, con rasgos del espectro autista y crisis epilépticas.
La Asociación Síndrome MEF2C fue fundada en Abril de 2016 por familiares de niños afectados por esta enfermedad rara con el propósito de recaudar fondos para su investigación y futuro tratamiento.
Existen dos vías de investigación sobre el gen MEF2C, una de ellas desarrollada por el Dr. Stuart Lipton en el Scripps Institute de San Diego (EE.UU), y la otra por el Dr. Cowan en la Universidad Médica de Carolina del Sur (MUSC) de Charleston (EE.UU).
Donators (51)
Jesús
120€
452 days ago
Anonymous
Hidden donation
453 days ago
Anonymous
Hidden donation
453 days ago
Joan
35€
453 days ago
Anonymous
Hidden donation
453 days ago
Anonymous
Hidden donation
453 days ago
Anonymous
Hidden donation
453 days ago
Anonymous
Hidden donation
453 days ago
Mercedes
20€
453 days ago
Anonymous
20€
453 days ago
Maria
20€
453 days ago
Yolanda
20€
453 days ago
Carlos
20€
453 days ago
Violeta
20€
453 days ago
Pablo
10€
453 days ago
Anonymous
20€
453 days ago
Miguel Angel
100€
453 days ago
Anonymous
Hidden donation
453 days ago
Anonymous
Hidden donation
453 days ago
Jesus
15€
454 days ago
enrique
35€
454 days ago
Enric
20€
454 days ago
Ana
20€
454 days ago
Marta
30€
454 days ago
Mercedes
20€
454 days ago
Susana
Hidden donation
455 days ago
Anonymous
Hidden donation
455 days ago
María Teresa
20€
455 days ago
Anonymous
Hidden donation
455 days ago
MARIA JOSE
Hidden donation
455 days ago
Fernando Buj Carceller
Hidden donation
455 days ago
David
35€
455 days ago
SILVIA
20€
456 days ago
Isabel Tena Beltrán
50€
456 days ago
David
20€
458 days ago
Anonymous
Hidden donation
458 days ago
Juan Antonio y Flavia
30€
459 days ago
Alejandro
50€
461 days ago
Maria del Mar
170€
462 days ago
Sara
20€
462 days ago
Anonymous
Hidden donation
463 days ago
Román
30€
463 days ago
Ernesto
25€
464 days ago
Patricia Isabel
50€
465 days ago
Javier
20€
465 days ago
Mireia
35€
465 days ago
Sebas
20€
465 days ago
Miriam
10€
465 days ago
Pere Nahum
50€
465 days ago
Elena
30€
466 days ago
Comments (8)
Jesús
Michel, Marta y Leyre, 12 vueltas por Celia
Joan
Joan
Mercedes
Per una bona causa
Sara
Sara i Luis, dos voltes per Celia i els demés xiquets MEF2C
Román
Vilafranca solidària
Patricia Isabel
Enhorabuena por esta preciosa iniciativa. ¡Ánimo y suerte!
Elena
Mateo-Ale-Ele tres vueltas por el MEF2C
Román
Vilafranca solidària, tota pedra fa paret