Collected
3.070€
To benefit
Fila 0 for the Piel de Mariposa 5K Race, Seville – 4 October 2026
Make a donation to support people living with Butterfly Skin Disease
Collected
3.070€
Goal
10.000€
Donations
173
Left
12 days
In support of
Cause lead by
Category
Next 4 October, runners in Seville will come together for a very special cause. As part of the 5K race taking place in the Nervión-San Pablo District, we want you to be part of this solidarity movement supporting Butterfly Skin Disease.
Butterfly Skin Disease (Epidermolysis bullosa) is a rare, genetic and very painful condition that currently has no cure. People living with it have extremely fragile skin, as delicate as a butterfly’s wings. Even the slightest friction, such as a hug, can cause wounds and blisters that may take even years to heal.
Your donation helps DEBRA Piel de Mariposa, an NGO dedicated to supporting people and families affected by the condition, to continue accompanying them throughout their journey with the disease.
Will you join us? 🦋💙
Your support gives us wings.
Imagina no poder abrazar a tu bebé por miedo a hacerle daño. La Piel de Mariposa es una enfermedad de tipo genético, rara e incurable que provoca una extrema fragilidad de la piel, causando heridas y ampollas por todo el cuerpo ante el más leve roce. Su piel es tan frágil como las alas de una mariposa
Una de cada 227 personas somos portadoras del gen defectuoso que provoca la enfermedad, por lo que esta puede irrumpir en cualquier familia de forma inesperada. La Asociación Piel de Mariposa (DEBRA España) es una organización sin ánimo de lucro que trabaja para mejorar la calidad de vida de los afectados y sus familias. Tú también puedes aportar tu granito de arena. www.pieldemariposa.es
About DEBRA, the Butterfly Children Charity:
Imagine not being able to hug your baby because you are afraid of hurting it. Because it was born with a rare genetic condition called Epidermolysis bullosa (EB) also known as Butterfly Skin. An incurable condition that causes blisters and wounds with the slightest touch. The skin is as fragile as the wings of a butterfly. DEBRA, the Butterfly Children Charity is a non-profit organization that works to improve the quality of life of those affected and their families.
If you would like to know more about DEBRA, the Butterfly Children Charity and our work please visit www.butterflychildrencharity.com
Donators (173)
Leonor
5€
13 days ago
Anonymous
Hidden donation
13 days ago
EMV
Hidden donation
13 days ago
Anonymous
Hidden donation
13 days ago
Anonymous
Hidden donation
13 days ago
Isabel María
5€
13 days ago
Jesica
50€
13 days ago
Anonymous
Hidden donation
13 days ago
Vanessa Ruiz fernandez
Hidden donation
13 days ago
Anonymous
Hidden donation
14 days ago
Anonymous
Hidden donation
14 days ago
Anonymous
5€
14 days ago
Celina
20€
14 days ago
Anonymous
Hidden donation
14 days ago
Anonymous
Hidden donation
14 days ago
Eva
35€
14 days ago
Bea
10€
14 days ago
Anonymous
Hidden donation
14 days ago
Aimar
5€
14 days ago
Anonymous
20€
14 days ago
Ignacio Medina
10€
14 days ago
TERESA
35€
14 days ago
Anonymous
Hidden donation
14 days ago
Beatriz
20€
14 days ago
Anonymous
Hidden donation
14 days ago
Anonymous
Hidden donation
14 days ago
Inmaculada
10€
14 days ago
Mireia
35€
14 days ago
Anonymous
Hidden donation
14 days ago
Abian
Hidden donation
14 days ago
Elena
10€
14 days ago
Analu
10€
14 days ago
Álvaro
12€
14 days ago
Anonymous
Hidden donation
14 days ago
ManuelyNatalia
5€
14 days ago
Anonymous
10€
14 days ago
Anonymous
Hidden donation
14 days ago
Inés del Sol Martín
10€
14 days ago
Anonymous
Hidden donation
14 days ago
Macan
10€
14 days ago
Eduardo
10€
14 days ago
Anonymous
Hidden donation
14 days ago
Anonymous
5€
14 days ago
Héctor H.
20€
14 days ago
Pilar
50€
14 days ago
Pauca1316 Gestion S.l.
100€
14 days ago
Antonio
50€
14 days ago
Dolores
10€
14 days ago
Marta
5€
14 days ago
Rosa
3€
14 days ago
Comments (28)
Jesica
Mucho ánimo, lo has hecho genial
TERESA
Muchísimo ánimo y muchísima suerte
Beatriz
Animo valientes 😌
Abian
Ánimo Leo y su mami
Álvaro
Nada como apoyar con lo que sea por una grandísima causa
ManuelyNatalia
Por Leo , Fuerza
Pauca1316 Gestion S.l.
De parte del club 365Training
Francisco Manuel
Sois unos grandes!!!
Teresa
DIOS LOS BENDIGA A TODOS LOS ENFERMITOS Y A TODOS LOS QUE LOS AYUDAN🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Patri
Un abrazo enorme Leo!!!
Dolores
Para seguir investigando y dando calidad de vida a estas personas.
Pilar
Disfrutemos de la carrera y del evento
Adriana
Adriana
Juan
Lo vamos a conseguir!!!
María Esther
Porque se cumplan los sueños de los niños con piel de mariposa
AITHOR
Ánimo Leo!!Un fuerte abrazo de Djamel!
María Isabel
Un besazo Leo
Miguel Gallardo Galán
💪🏻💪🏻
Andrea brundin
Vamos Leo!
Susana Limon Rodriguez
Soy voluntaria de la tienda en calle feria Sevilla
Yuliana
Animo Leo! Te admiramos
Lui
No podré asistir físicamente pero me sentirás muy cerca. "Valençia amb tu", Valencia contigo.
Antonio
Por seguir avanzando y llegar a encontrar una cura 🦋❤️