Collected

1.225€

To benefit

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Causes

Destination Santiago: kilometers with a cause

The Camino de Santiago with the aim of raising awareness about Butterfly Skin and raising funds for the NGO DEBRA.

Collected

1.225€

Goal

6.000€

Donations

Left

Finished

20%

In support of

DEBRA PIEL DE MARIPOSA

Cause lead by

Alicia Sande

Aira Megías

Category

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Published: 24 Apr 2026

History
About the NGO

There are paths that are walked with the feet… and others that are walked with the heart.

We are two friends and colleagues, passionate about hiking, who have decided to undertake the Camino de Santiago together with a purpose that goes far beyond reaching the destination. We want to turn every kilometer into support.

Our challenge is clear: to arrive in Santiago on May 24 having raised €6,000 through our campaign on this platform. The full amount will be donated to the NGO DEBRA Butterfly Skin, thanks to everyone who chooses to sponsor our journey through their donations. Every step we take will be an opportunity to build support, visibility, and commitment.

We walk because we know very well, firsthand, the work of DEBRA, supporting people and families living with epidermolysis bullosa, one of the most severe and painful diseases that exists. We want to give voice to their daily reality, to their visible and invisible wounds, and to their incredible strength.

We also walk to advocate for the arrival across all Spanish provinces of the new gene therapy Vyjuvek, a breakthrough that could mark a turning point in their lives, helping to close wounds that have remained open for years and significantly improving their quality of life.

This journey is not only ours. It belongs to everyone who chooses to join us and walk alongside us through their donations, kilometer by kilometer.

Will you help us turn steps into support?

Imagina no poder abrazar a tu bebé por miedo a hacerle daño. La Piel de Mariposa es una enfermedad de tipo genético, rara e incurable que provoca una extrema fragilidad de la piel, causando heridas y ampollas por todo el cuerpo ante el más leve roce. Su piel es tan frágil como las alas de una mariposa

Una de cada 227 personas somos portadoras del gen defectuoso que provoca la enfermedad, por lo que esta puede irrumpir en cualquier familia de forma inesperada. La Asociación Piel de Mariposa (DEBRA España) es una organización sin ánimo de lucro que trabaja para mejorar la calidad de vida de los afectados y sus familias. Tú también puedes aportar tu granito de arena. www.pieldemariposa.es

About DEBRA, the Butterfly Children Charity:

Imagine not being able to hug your baby because you are afraid of hurting it. Because it was born with a rare genetic condition called Epidermolysis bullosa (EB) also known as Butterfly Skin. An incurable condition that causes blisters and wounds with the slightest touch. The skin is as fragile as the wings of a butterfly. DEBRA, the Butterfly Children Charity is a non-profit organization that works to improve the quality of life of those affected and their families.

If you would like to know more about DEBRA, the Butterfly Children Charity and our work please visit www.butterflychildrencharity.com

Donators (54)

Anonymous

15€

152 days ago

Anonymous

Hidden donation

153 days ago

Jen

80€

154 days ago

Stella

35€

155 days ago

Alicia

20€

156 days ago

Anonymous

Hidden donation

157 days ago

María del Carmen

40€

158 days ago

Luca

Hidden donation

158 days ago

Anonymous

Hidden donation

158 days ago

Jessica

300€

158 days ago

Marta

5€

159 days ago

PALOMA

Hidden donation

159 days ago

Dunia

Hidden donation

159 days ago

Diana Patricia

50€

159 days ago

MIW

5€

160 days ago

Alicia

2€

160 days ago

María Esperanza

20€

162 days ago

Anonymous

Hidden donation

162 days ago

Evanina

35€

162 days ago

Isa montenegro

10€

163 days ago

Alicia

10€

163 days ago

María y Mario

20€

163 days ago

Mariali

5€

163 days ago

Roberto pulpeiro

1€

163 days ago

Alicia

5€

164 days ago

Anonymous

15€

164 days ago

Alicia

20€

164 days ago

Anonymous

Hidden donation

164 days ago

Núria

20€

164 days ago

Isabel G

50€

164 days ago

Laura

50€

164 days ago

Inma

9€

164 days ago

Carreras Solidarias Los Intocables

5€

165 days ago

María del Carmen

5€

165 days ago

Lidia

20€

165 days ago

Cruz

5€

166 days ago

María del Carmen

50€

166 days ago

Irene

5€

167 days ago

Esther

35€

167 days ago

Jesica

1€

167 days ago

Romane

Hidden donation

167 days ago

Anonymous

Hidden donation

167 days ago

Anonymous

Hidden donation

168 days ago

María Isabel Sarria

5€

168 days ago

Richard

1€

168 days ago

Anonymous

Hidden donation

168 days ago

Nerea

5€

168 days ago

Delia

10€

168 days ago

Roberto

10€

168 days ago

Anonymous

Hidden donation

168 days ago

See more donators

Comments (26)

Jen

154 days ago

¡Equipazo!

Stella

155 days ago

Gracias por vuestra forma de dar y amar

Alicia

156 days ago

Apoyo de la abuela Carmen

María del Carmen

158 days ago

Ánimo chicas!! De Geli y Anita

Jessica

158 days ago

De parte de Kira&Kloe y el grupo que las acompañaba. Ánimo chicas!!

PALOMA

159 days ago

Ánimo chicas!!! Disfrutad el camino 💛

Dunia

159 days ago

A por la recta final, campeonas! 💪🏼

Diana Patricia

159 days ago

Que buena idea!

Alicia

160 days ago

Gracias a Tamara de Ourense y a Vicente de Gor que nos han donado 1€ durante el camino para apoyar nuestro reto

Evanina

162 days ago

Campeonas, sois un regalo para el mundo

Isa montenegro

163 days ago

Ánimo,nada es imposible.
Entre tod@s lo conseguiremos.La fe mueve montañas.

Alicia

163 days ago

Donación de Entique Pascual y José Luis Araujo de Madrid desde el Camino De Santiago. Gracias 🙌

María y Mario

163 days ago

No andáis solas, somos muchos los que os acompañamos en el camino!

Alicia

164 days ago

Donación de Joe de México desde el camino de Santiago

Alicia

164 days ago

Donación de Dolores Espino de Fuerteventura desde el Camino de Santiago

Núria

164 days ago

¡A por todas!

Isabel G

164 days ago

Ánimo Valientes 😘

Esther

167 days ago

Qué alegría tener una amiga como tú, Ali, que se moja y va a por todo en lo que cree. Mucha suerte y ¡a recaudarlo y caminarlo todo!

Jesica

167 days ago

Mucha suerte

Roberto

168 days ago

Vamos campeonas!!

Anali

168 days ago

Gracias

Gema

183 days ago

Vamos campeonas que lo vais a conseguir!! 💙🦋🦋💙

DEBRA PIEL DE MARIPOSA

Donators (54)

Comments (26)

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