Collected

2.156€

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Running the Barcelona Marathon for Aina and a Cure for Angelman Syndrome

Raising funds for research to find a cure for Angelman Syndrome, inspired by my niece Aina.

Collected

2.156€

Goal

5.000€

Donations

34

Left

40 days

44%
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Category

Investigación científica Enfermedades raras

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Published: 16 Feb 2026

Next month, I'll be running the Barcelona Marathon to raise funds for research toward a cure for Angelman Syndrome, a rare neurological disorder that affects my niece, Aina.

Aina is joyful, loving, and full of life. She brings happiness to everyone around her. But Angelman Syndrome also brings serious challenges: it affects speech, mobility, sleep, and independence.

Despite these challenges, Aina faces every day with an incredible smile and strength.

There is hope. Scientific research is advancing, and many researchers believe that a cure is possible. But progress depends on funding.

That is why I am running this marathon: to support research that can change Aina’s life, and the lives of thousands of children and families around the world.

Every donation, no matter how small, helps move us closer to a cure.

Thanks for your support.

  • Dar soporte humano e informativo, así como orientación, a todas las familias de afectados.
    También a profesionales.

  • Contribuir a la divulgación de los conocimientos sobre el síndrome.

  • Mejorar la calidad de vida de los afectados por el Síndrome de Angelman y sus familias.

  • Fomentar y financiar investigaciones sobre el síndrome.

Donators (35)

Cindy and Rick

66€

One hour ago

Kathy Rodriguez

20€

6 hours ago

Gaurav Menda

35€

8 hours ago

The Van Dyks

50€

8 hours ago

Vinnie B

35€

10 hours ago

Maria Luisa

Hidden donation

11 hours ago

L.

50€

12 hours ago

Pol

35€

One day ago

Daniela & Vicente

50€

One day ago

Anonymous

Hidden donation

One day ago

Jordan, Megan, Charlotte & Amalfi

50€

One day ago

Eli

Hidden donation

One day ago

Nuria

100€

One day ago

A. Bosch

20€

One day ago

Anonymous

250€

One day ago

Teresa C

50€

One day ago

Anna M

Hidden donation

2 days ago

Carlos

10€

2 days ago

Agnès

50€

2 days ago

Jeff & Clara

50€

2 days ago

Daryl Hunt

35€

2 days ago

Anonymous

Hidden donation

2 days ago

Lisa Brantley

50€

2 days ago

Scott Uttenreither

35€

2 days ago

Nuria Madrenas

50€

2 days ago

Travis smith

50€

2 days ago

Ruppelt

50€

2 days ago

Juan

250€

2 days ago

Lucia Galant

35€

2 days ago

Glòria

20€

2 days ago

Martina

50€

2 days ago

Carla Fajertag

20€

2 days ago

marta Sanz Palau

35€

2 days ago

Oriol

250€

2 days ago

See more donators

Comments (11)

Cindy and Rick

One hour ago

Wonderful that you are helping her Oriol! Have a great run!

Vinnie B

10 hours ago

Run fast!

Jordan, Megan, Charlotte & Amalfi

One day ago

Will you be running the temple?

Agnès

2 days ago

Visca !!

Juan

2 days ago

Iaios de Aina

Lucia Galant

2 days ago

Bravo Uri!!!!

Glòria

2 days ago

Gloria Consola

Martina

2 days ago

🙏🏻✨

Carla Fajertag

2 days ago

❤️

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