Collected
9.005€
To benefit
Month of Rare Diseases...with your help nothing is imposible!
Help us GIVE HOPE to Mencía and thousands of children who, like her, have no cure or treatment for their illness.
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There are 300 million people with rare diseases around the world, 3000 people suffer from them in Spain.
The month of February, being a different month, has been chosen to visualize these rare but real diseases and claim the importance of supporting its research and cure.
Mencia Foundation needs you more than ever to be able to start this new innovative project: Development of a GENE THERAPY to "cure" the animal model obtained in the foundation´s first project.
- In this project we will use the Crispr Cas9 tool for which the have recently awarded the Nobel Prize in Chemistery 2020 and Princess of Asturias Prize for Scientific and Technical Research 2015 to Emmanuelle Charpentier and Jennifer Doudna.
- It will allow to deepen the study of a gene therapy for mitochondrial diseases in order to one day carry out a clinical trial and thus help thousands of sick children who currently have no hope.
- This project will be developed by a consortium consisting of 4 scientific teams from 4 different search centers: Instituto de Recerca del Vall D´Hebron (coordinating team), CIMA (University of Navarra), I+12 (Hospital 12 de octubre) and University of Zaragoza.
La Fundación MENCÍA se dedica a promover proyectos de investigación científica enfocados a buscar el tratamiento o cura de las Enfermedades Raras de origen genético. La mayoría de las cuales a día de hoy son muy graves y altamente discapacitantes.
Donators (48)
Kelly
Hidden donation
1,600 days ago
Carolina
Hidden donation
1,604 days ago
marga
20€
1,614 days ago
Paloma
150€
1,615 days ago
Maria Gloria
35€
1,617 days ago
Emilia
15€
1,633 days ago
Rocio
50€
1,635 days ago
Anonymous
15€
1,640 days ago
Anonymous
100€
1,641 days ago
J
5€
1,641 days ago
Ornella
500€
1,642 days ago
Ornella
1.000€
1,642 days ago
Ornella
1.000€
1,642 days ago
Ornella
1.000€
1,642 days ago
Thiago Perinazzo
25€
1,643 days ago
Mauricio
10€
1,645 days ago
Marta
3.000€
1,645 days ago
Jose Ramon
50€
1,645 days ago
Magnun
49€
1,646 days ago
Vicente
150€
1,646 days ago
Josep Maria
35€
1,647 days ago
María José
100€
1,647 days ago
Mauricio
150€
1,648 days ago
Ceni Tiecher
15€
1,649 days ago
Camile
15€
1,649 days ago
Maria Kippper
15€
1,650 days ago
Magnun
101€
1,650 days ago
Anonymous
Hidden donation
1,650 days ago
Magnun
100€
1,650 days ago
Mauricio
50€
1,650 days ago
Juan pablo capellas
25€
1,650 days ago
Mauricio
60€
1,650 days ago
Mauricio
100€
1,650 days ago
LORENZO
150€
1,651 days ago
Kelly
Hidden donation
1,652 days ago
Anonymous
200€
1,654 days ago
Iñigo
50€
1,654 days ago
Mónica
Hidden donation
1,654 days ago
Merche
100€
1,655 days ago
Inmorelos Investments sl
Hidden donation
1,656 days ago
Marta
15€
1,657 days ago
Kelly
35€
1,657 days ago
Rocio
15€
1,657 days ago
Anonymous
25€
1,657 days ago
Alberto
25€
1,657 days ago
Macarena
15€
1,657 days ago
Antonio
50€
1,657 days ago
Anonymous
50€
1,657 days ago
Comments (15)
Ornella
Les amis et la famille de Louise et Manon sont heureux de vous envoyer ces 3500 euros.
Ornella
De la part des amis et de la famille de Manon et Louise
Ornella
De la part des amis et de la famille de Louise et Manon
Ornella
De la part des amis et de la famille de Louise et Manon
Thiago Perinazzo
Fé na pesquisa.
Marta
Querida Isabel, aportamos nuestro grano de arena, y espero que sea el primero del muchos. Viva la Gospa!! Nos vemos pronto!!
Jose Ramon
Mi granito...
Vicente
A por el objetivo!
Josep Maria
contento de poder ayudar con mi granito de arena.
María José
Ojalá pronto encontremos la cura para estas enfermedades
Merche
Bravo Isabel!! gran iniciativa ! besos